How to Fight Rare Disease with Innovation and Hope: Ashley Evans & the SynGAP Research Fund

The Weekly Knockout

Ashley Evans, technology investor at the Carlyle Group, had just had her son Tony when she spoke at the first Kayo conference in 2014.  Four years later, Tony was diagnosed with SynGAP1 syndrome, a rare genetic neurodevelopmental disorder caused by mutations in the SYNGAP1 gene.  Without any prior knowledge of this rare disease, Ashley and her husband dove in and learned everything they could. They realized science is moving fast, and with the heart of parents and mindset of investors, they decided to do something. 

Join Kayo Founder and host, Lindsay Burton, and featured trailblazer Ashley Evans, Carlyle Group, on May 13 at 2pm ET to hear the story of how the Syngap Research Fund was formed, and how Ashley and her family plan to accelerate the science to Tony and other individuals with rare disease. 


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